Posted: January 16th, 2023
NURS 6051 Big Data Risks and Rewards Essay
Within our day we interact with multiple data-collecting devices. Every time we swipe our debit card data is sent to that company. They use this to track your spending habits, frequency, likes, and dislikes. They use this data to target your spending behavior and thereby send you information on credit card applications and incentives to entice you to continue to make their companies more money. Health care is similar, but we often think about the information we are collecting. Our electronic health records capture thousands of data points about our patients. In my field, we capture wound size, width, depth. We capture admission information and discharge outcomes that eventually lead to benchmarking standards. When I think of big data collection and health care I think of a company 23and me and other genetic big data collection companies. This company collects DNA samples for people across the world NURS 6051 Big Data Risks and Rewards Essay.
“23andMe offers a direct-to-consumer (DTC) genetic testing service based on the use of single-nucleotide polymorphisms (SNPs) to determine ancestry and to identify genetic markers associated with specific diseases and conditions and a few specific causal variants that the company claimed could provide information about their clients’ health and how to improve it(Stoeklé et al., 2016, p. 2).”
This collection of information has connected families and provided insight into your origins and ancestry. This valuable information collected by millions of willing participants is used in many great ways. “This collection of information has connected families and provided insight into your origins and ancestry(Khan & Mittelman, 2018, p. 2).” The use of this information could also one day be used to come up with cures for diseases or find trends in genetic patterns that unlock targeted gene therapy to cure specific disease types. However, with the ability to capture this amount of data comes a price. The data collected from these companies are often sold to other companies looking for this valuable information. Most of that information is used to aid in advancements in health care but some can manipulate it and could use the data in ways we are not aware of now. For example, what if your insurance company was able to retrieve your data and then preclude you from health care due to underlying conditions. This could severely limit coverage and your health care choices. There is also the unintended used some good and some bad we are not aware of. The data of these companies are now being used to solve cold cases and current crimes as the government. A genetic testing company was subpoenaed for access to their records which were used to solve the Golden State killer case NURS 6051 Big Data Risks and Rewards Essay. Many of us would have no problem with that but those who submitted their DNA did not sign away their rights to have their data used in that way. “The Fourth Amendment prohibits the government from conducting unreasonable searches of people or their property(Brown, 2019, p. 11).” Whether you agree or disagree about the outcomes of the data search leads to many ethical questions as to what our data is used for. In health care, we are protected and this data appropriation is mitigated by many layers of protection and consents that specifically state what, where, and how our data can be used but those who wish to exploit us, and our patients know the value in this big data and leave us vulnerable to Ransom were attacks and breaches in our information NURS 6051 Big Data Risks and Rewards Essay.
Brown, T. R. (2019). WHY WE FEAR GENETIC INFORMANTS: USING GENETIC GENEALOGY TO CATCH SERIAL KILLERS. Columbia Sci Technol Law Rev., 21(1), 114–181. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7946161/
Khan, R., & Mittelman, D. (2018). Consumer genomics will change your life, whether you get tested or not. Genome Biology, 19(1). https://doi.org/10.1186/s13059-018-1506-1
Stoeklé, H.-C., Mamzer-Bruneel, M.-F., Vogt, G., & Hervé, C. (2016). 23andme: A new two-sided data-banking market model. BMC Medical Ethics, 17(1). https://doi.org/10.1186/s12910-016-0101-9
When you wake in the morning, you may reach for your cell phone to reply to a few text or email messages that you missed overnight. On your drive to work, you may stop to refuel your car. Upon your arrival, you might swipe a key card at the door to gain entrance to the facility. And before finally reaching your workstation, you may stop by the cafeteria to purchase a coffee.
From the moment you wake, you are in fact a data-generation machine. Each use of your phone, every transaction you make using a debit or credit card, even your entrance to your place of work, creates data. It begs the question: How much data do you generate each day? Many studies have been conducted on this, and the numbers are staggering: Estimates suggest that nearly 1 million bytes of data are generated every second for every person on earth NURS 6051 Big Data Risks and Rewards Essay.
As the volume of data increases, information professionals have looked for ways to use big data—large, complex sets of data that require specialized approaches to use effectively. Big data has the potential for significant rewards—and significant risks—to healthcare. In this Discussion, you will consider these risks and rewards.
Post a description of at least one potential benefit of using big data as part of a clinical system and explain why. Then, describe at least one potential challenge or risk of using big data as part of a clinical system and explain why. Propose at least one strategy you have experienced, observed, or researched that may effectively mitigate the challenges or risks of using big data you described. Be specific and provide examples NURS 6051 Big Data Risks and Rewards Essay.
Respond to at least two of your colleagues* on two different days, by offering one or more additional mitigation strategies or further insight into your colleagues’ assessment of big data opportunities and risks.
you bring an excellent example of big data’s pros and cons with the 23 and me and other like-minded companies. This information can bring families together and give people insight into risks for diseases they may not have known about (Kubick, 2013). There is great concern about how that data is used. Interestingly, an exciting thing is happening; however, the first genetic link to depression may have been found because of data from 23 and me (Abbasi, 2017). I believe that these genetic background companies can use their data to help people and help find cures for diseases, but I think there must be a way to protect this data not to get into the wrong hands.
Abbasi, J. (2017). 23 and me, big data, and the genetics of depression. JAMA, The Journal of the
American Medical Association, 317(1), 14.
Kubick, W. R. (2013). Personalized Medicine, Data, and Me. Applied Clinical Trials, 22(10), 24–25.
What an exciting topic you picked regarding direct-to-consumer genetic testing. I
personally have felt torn on getting my DNA tested for the exact reasons you mentioned, the
unintended consequences. I have always had a fascination with murder mysteries, which is part of the reason I would like to focus my PMHNP on forensic psychology, so using DNA through organizations such as 23andMe or ancestry to catch murderers like the Golden State Killer in California is fascinating NURS 6051 Big Data Risks and Rewards Essay.
DNA testing in this regard is vastly unknown, and police investigation has become a hot topic. Two companies ancestry.com and 23andMe, do not voluntarily cooperate with law enforcement (Chrisos, 2020), while GEDmatch now has clients opt if they want to participate in police searches or not (Payne, 2020).
Direct-to-consumer genetic testing can be significant for many reasons, finding long-lost family, tracing lineage, finding common illness within your family tree, but there also comes the risks. According to Raven (2018), there is a lack of appropriate counseling before and after patients get their results. Many factors analyze a patient’s risks regarding genetic diseases and conditions that these at-home kits do not address. Her sound advice is to consult your physician or genetic counselor to analyze your genetic history, risk factors, and concerns NURS 6051 Big Data Risks and Rewards Essay.
I feel people are quick to jump on these at-home kits without thinking about the consequences. Putting your information out there is never safe, and a breach of confidentially is always eminent. Becoming more educated on what you are doing, where that information is going, and how it is handled can help inform the person in making a decision they are most comfortable with.
Payne, K. (2020, August 28). Police used a genealogy website to crack an iowa cold case. The tool is raising concerns elsewhere. Iowa Public Radio. https://www.iowapublicradio.org/courts/2020-03-07/police-used-a-genealogy-website-to-crack-an-iowa-cold-case-the-tool-is-raising-concerns-elsewhere.
Chrisos, J. (2020, November 17). Thinking about testing your ancestry? Here’s how police, researchers are using the results. WGME. https://wgme.com/news/i-team/thinking-about-testing-your-ancestry-heres-how-police-researchers-are-using-the-results.
Raven, K. (2018, November 18). Is an at-home DNA test an ideal gift, really? Yale Medicine. https://www.yalemedicine.org/news/at-home-genetic-test-kit-holiday-gift NURS 6051 Big Data Risks and Rewards Essay.
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